Business Description

Indo U.S. Organization for rare diseases (IndoUSrare) is an independent non-profit organization dedicated to supporting the lives of individuals affected by rare and underserved medical conditions of Indian origin in the USA, India, & globally.

By encouraging collaborations among researchers, healthcare providers, and patient communities, We aim to provide comprehensive support to the USA, & the Indian subcontinent through research & development of diagnostics & therapies through education, advocacy, research, & grants.

At IndoUSrare, our mission is to take a proactive role in establishing and sustaining patient-centric education, awareness, training, research, and engagement programs aligned with the FDA's patient-focused drug development (PFDD) paradigm in the following ways:

Diversity Patients Alliance Program
Tech-enabled Patients Concierge
Corporate Diversity Advisory Council (CDAC)
Research Programs
National and international conferences

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